"Parental Roles in Health Care Transition" by Brooke Allemang, Gina Dimitropoulos et al.

Article Title

More Than Simply “Letting Go”: Stakeholder Perspectives on Parental Roles in Health Care Transition

Author

Brooke Allemang, Faculty of Social Work, University of CalgaryFollow
Gina Dimitropoulos, Faculty of Social Work, University of CalgaryFollow
Susan Samuel, Department of Pediatrics, Section of Nephrology, Cumming School of Medicine, University of CalgaryFollow
Andrew Mackie, Department of Pediatrics, Division of Cardiology, University of AlbertaFollow
Elizabeth Morgan-Maver, Cumming School of Medicine, University of CalgaryFollow
Jorge L. Pinzon, Developmental Pediatrics, Alberta Children's HospitalFollow

Periodical Title

Journal of Adolescent and Family Health

Publisher

University of Tennessee at Chattanooga

Place of Publication

Chattanooga (Tenn.)

Date

August 2019

Abstract

The transfer from pediatric to adult health care for youth with special health care needs (YSHCN) is a vulnerable period. Parents play a pivotal role in the transition process, however, little is known about the specific ways they may support YSHCN in negotiating the transition to adult services. A qualitative supplementary secondary data analysis was conducted to explore stakeholders’ perceptions about parents’ roles in health care transition. Thematic analysis was used to analyze individual and focus group interviews. Four themes were identified: 1) Parents are crucial; 2) Changing roles; 3) Interdependence rather than independence; 4) One of many transitions. These themes may serve as the basis for planning future intervention studies directed at parents of YSHCN.

Cover Page Footnote

This study was supported by a Canadian Institutes of Health Research Project Grant. The authors acknowledge the contributions of all stakeholders who participated in interviews and focus groups for this study.

Subject

Adolescent health services; Families -- Health and hygiene

Keyword

health care transition; parents; youth; young adults; emerging adulthood

Document Type

articles

DCMI Type

Text

Language

English

Rights

http://rightsstatements.org/vocab/InC/1.0/

Recommended Citation

Allemang, Brooke; Dimitropoulos, Gina; Samuel, Susan; Mackie, Andrew; Morgan-Maver, Elizabeth; and Pinzon, Jorge L. (2019) "More Than Simply “Letting Go”: Stakeholder Perspectives on Parental Roles in Health Care Transition," Journal of Adolescent and Family Health: Vol. 10: Iss. 1, Article 1.
Available at: https://scholar.utc.edu/jafh/vol10/iss1/1

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