Journal of Adolescent and Family Health
University of Tennessee at Chattanooga
Place of Publication
The transfer from pediatric to adult health care for youth with special health care needs (YSHCN) is a vulnerable period. Parents play a pivotal role in the transition process, however, little is known about the specific ways they may support YSHCN in negotiating the transition to adult services. A qualitative supplementary secondary data analysis was conducted to explore stakeholders’ perceptions about parents’ roles in health care transition. Thematic analysis was used to analyze individual and focus group interviews. Four themes were identified: 1) Parents are crucial; 2) Changing roles; 3) Interdependence rather than independence; 4) One of many transitions. These themes may serve as the basis for planning future intervention studies directed at parents of YSHCN.
Cover Page Footnote
This study was supported by a Canadian Institutes of Health Research Project Grant. The authors acknowledge the contributions of all stakeholders who participated in interviews and focus groups for this study.
Allemang, Brooke; Dimitropoulos, Gina; Samuel, Susan; Mackie, Andrew; Morgan-Maver, Elizabeth; and Pinzon, Jorge L.
"More Than Simply “Letting Go”: Stakeholder Perspectives on Parental Roles in Health Care Transition,"
Journal of Adolescent and Family Health: Vol. 10
, Article 1.
Available at: https://scholar.utc.edu/jafh/vol10/iss1/1